Wednesday, March 31, 2010
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Dealing with a somewhat rare nerve disorder.
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Links For NA/HNA or PTS
- From rarediseases.org
- Finally a diagnosis but still more questions (From Well Blogs- NYTimes)
- Charcot-Marie-Tooth Association
- Neuralgic amyotrophy by Nens van Alfen
- Neuralgic Amyotrophy: Idiopathic and hereditary form
- The Experience Project Parsonage Turner Group
- Parsonage Turner Support Group on Facebook
- "Essential Tremor" Information
- The clinical spectrum of neuralgic amyotrophy in 246 cases
- The Dutch Neuromuscular Research Center
- Long-Term Pain, Fatigue, and Impairment in Neuralgic Amyotrophy
- Hereditary Neuralgic Amyotrophy on GeneReviews
- Plexus Disorders from Merck Manuals Online
- United Brachial Plexus Network Message Boards
- American Autoimmune Related Diseases
- AutoImmunity Community
- Parsonage Turner Syndrome on Healthline
How did yours start?
ReplyDeleteIt started with pain in my right shoulder which eventually lead to inability to flex my right thumb and index finger. Six years later pain returned in shoulder which lead to winged scapula and weakness. There is more detail in earlier sections of the blog.
ReplyDelete