About a year ago I mentioned passing the 10,000 page view milestone. Now this little blog is at 14,000.
Time flies when you are having fun? I have to admit again, there are much worse afflictions out there to have to deal with. I am fortunate that this one is simply a pain in the arm- or neck (or any other place) as the case may be. The weakness is irritating. It can be infuriating. The pain can be debilitating. I have been luckier than most with that. My pain so far is easily managed. I miss being able to do things. And I miss being able to not think about how to do the things I can do before trying them. But again, it is not the same as what many I know have gone through with, say cancer to mention one. Other than the possible involvement with the phrenic nerves, there is little that approaches being life threatening about PTS/HNA.
When I started this in 2009, there was very little out on the web about HNA or PTS- at least as far as how it could impact people in real life. Now it seems quite different. There may still be the out of date information, but there are more places that HNA/PTS patients can go to talk to others about their own issues and how they deal with them. If I have been any help to any of you, that makes it easier for me.
No comments:
Post a Comment