https://rarediseases.org/rare-diseases/parsonage-turner-syndrome/
Lots of good information and in a non-technical easy to understand style.
Saturday, July 25, 2015
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Dealing with a somewhat rare nerve disorder.
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Links For NA/HNA or PTS
- From rarediseases.org
- Finally a diagnosis but still more questions (From Well Blogs- NYTimes)
- Charcot-Marie-Tooth Association
- Neuralgic amyotrophy by Nens van Alfen
- Neuralgic Amyotrophy: Idiopathic and hereditary form
- The Experience Project Parsonage Turner Group
- Parsonage Turner Support Group on Facebook
- "Essential Tremor" Information
- The clinical spectrum of neuralgic amyotrophy in 246 cases
- The Dutch Neuromuscular Research Center
- Long-Term Pain, Fatigue, and Impairment in Neuralgic Amyotrophy
- Hereditary Neuralgic Amyotrophy on GeneReviews
- Plexus Disorders from Merck Manuals Online
- United Brachial Plexus Network Message Boards
- American Autoimmune Related Diseases
- AutoImmunity Community
- Parsonage Turner Syndrome on Healthline