Wednesday, March 31, 2010

On Facebook- Parsonage-Turner Syndrome Support Group

Just wanted to let you know- Maybe I was the last to know- that there is a support page for PTS on Facebook. Once you join Facebook, search for "Parsonage-Turner Syndrome Support Group". Good info, and more people out there to share stories with.

Thursday, March 11, 2010

Yard work and no shaking

I have run our weed whacker for the first time this season, and I have to say that I experienced no tremor or muscle shaking at any time during or after the usual circuit of the yard. I even kept going and wound up a 100 foot extension cord wrapping it over and around my left arm, then mowed the lawns front and back- and then cut up some branches to get rid of.

Of course, I did manage to whack my left ankle. this is not a nylon line weed whacker. No. I had to go and replace that with two plastic blades. I always wondered what would happen if I miscalculated how close my leg was to the working end of this contraption. Now I know. Nothing major damage-wise, but I do not recommend it.

So- what tremor? Just add a bit of magnesium, and it seems to be gone- for me at least.

Wednesday, March 3, 2010

Magnesium Deficiency and H1N1 shots related to Parsonage Turner Syndrome?

I notice in reports that some have searched to find my blog with these queries. Do not worry, that is all I can see about the site. I do not see any information about any specific users. . .

Anyway, about the queries-

Flu shots a cause for PTS?

I have never seen any evidence specifically linking any particular injection to Parsonage Turner Syndrome. But, I have seen that Brachial Plexus Neuritis (one name PTS can go by) has at least been linked to certain injections, among them influenza injections. Sites I have seen do not say injections are a direct cause, but only that in certain cases, the only thing that had happened recently to a sufferer is that they listed having had a flu shot. See this site for examples of causes- if you have not already found it. http://emedicine.medscape.com/article/315811-overview

Magnesium Deficiency linked to PTS?

Magnesium Deficiency is a possible culprit in many diseases as I have alluded to in the blog previously. It does cause overall weakness, tremors and twitching and a general feeling of malaise- like you are just winding down to minimal function. In my opinion, if you also have PTS or NA, or even HNA, the weakness associated with PTS can be additive if you have magnesium deficiency on top of it. It was for me at least. But, as a cause, I do not think magnesium deficiency would be a direct cause for PTS in any of its other names. PTS causes winging scapula and other distinct muscular losses, and may cause a general weakness of the impacted limbs. But, low magnesium would produce weakness all over the body by comparison. Also, once you correct the magnesium deficiency, overall strength improves quickly, along with a cessation of other related symptoms like twitches and tremors. Even at that though, my scapula is still winged, and my right thumb is still partially paralyzed.