Weakness continues and irritability

I really am getting tired of this at this point. I never know if I will be able to stand in one fluid motion. Usually, it is not in one motion but in a series of starts and partial stops. My legs seem to be worse in general than before. Usually the left leg recently has bothered me but today it was more noticeable in the right one. Maybe this actually was a good thing because it evened out my stride a bit and I was able to walk faster overall than recently.

My left arm/hand seems to tremor a bit more than my right and that is fairly consistently how it goes. And today as I said my right leg got a bit worse as far as weakness and tremor. Actually, maybe tremor is not the right word. I had been on a step-stool for maybe 10 minutes. When I got off it, I could not put full weight on my right leg without it twitching. So, if that is a tremor in the leg, I have not noticed that before after such minimal activity as standing on a step-stool/

And I am a bit more irritable than in recent years.

Is this a part of Neuralgic Amyotrophy? Or is there something else? I still worry about that.

This is NOT Turner Syndrome

Sometimes I look at reports to see just what people are searching for when they pop into my blog. It is interesting to see that I am not alone in some of the things happening to me, at least judged by the searching terms used to get here. One thing I should mention from time to time is that Parsonage Turner Syndrome is NOT the same thing as Turner Syndrome. If you are here looking for experiences that relate to Turner Syndrome, nothing I have said is related to you. This is one reason I usually refer to what I have as Neuralgic Amyotrophy. That way, no one gets the wrong idea by only remembering a part of the name, or only one of the two doctors associated with it. Doctors Parsonage and Turner were the first to describe this syndrome, and that is the reason those names are associated with it. Turner Syndrome is a totally different thing.

DHEA for tremor and strength issues

I had mentioned that I was trying DHEA for some control of tremor and better strength, and at first it seemed to be helping. It still may be except it seems the help to my tremor and strength comes at the expense of my eyes. The longer I used the DHEA, the more irritated my eyes became. My eyes got tired earlier and earlier each day. I also noticed this in reading, or trying to. It got to the point that after reading for a few minutes, I noticed eye irritation. This lead to stinging and tearing of my eyes, and was rapidly followed by dryness. This gets a bit distracting while reading. So I stopped it.

Within a couple of days, I could read for increasingly longer intervals, and now I can read about as long as I want to. But, I have noticed the weakness returning and a bit more of the tremor again. It goes on.

The Internet is an amazing thing

It is interesting that I see my little blog popping up when I search for information about HNA, or PTS. This time though it was a bit more weird. I was viewing stories from the Expereinces website I had linked the post prior to this one. I started to think, I have got to add a comment about this one post. The writer had pain in his lower back and his doctors said it could not be related to PTS. I was going to comment about how PTS can hit any of the plexus sites, and then saw that someone had not only beat me to it but they had left a link to my blog entry that talked about this.

Experience Project "I have Parsonage Turner Syndrome"

This could be interesting for anyone wanting to see how others have dealt with PTS. There are not a lot sharing stories of their PTS, but it can give you an idea of what it is like for others. Or, you can join and submit your own story of how PTS impacts your life.

http://www.experienceproject.com/groups/Have-Parsonage-Turner-Syndrome/92246